Number-one bestselling author
I live with Cerebral Palsy and Multiple Sclerosis.
After my last MRI a few months ago, they found new lesions in my brain caused by the Multiple Sclerosis. I was put on a new drug called Mavenclad. Its purpose is to wipe away the immune system so that when it rebuilds itself, it will hopefully do so without the lesions. It’s a chemo drug normally used to treat leukemia.
When the medication arrived, it had a red sticker on it with a big white cross. I’d never received something with a medical symbol of any kind on it, but for some reason it stuck with me, that big white cross. I’m not sure how the subject came up, but when I was talking to my Wonder Mom one day during the treatment, she mentioned the fact that I was like a superhero and maybe the Mavenclad was going to ramp up my powers.
“I would totally need a cape,” I told her.
“Yes, a red cape with a white cross.” She said.
“No, not red and white. I would need a purple cape with a sparkly silver cross. That would be more my style.”
“Yes, you could be Captain Mavenclad!”
“Hmmm, what about Captain Maven?” I was thinking of the way I tried to remember the medication name: I’m a maven clad in raven’s clothes.
“That does have a nice ring to it.”
Now I couldn’t get the image of Captain Maven out of my head. I asked the very talented CaitGordon if she could draw me a Captain Maven drawing. She did so, giving him a cup of power (I had to drink a lot of water when I took the Mavenclad) and a sceptre of light (I sometimes walk with a cane, and I like to sparkle). To say that I loved it is putting it mildly. It put the whole chemo med thing into something that I could draw light from, something that brought me joy. I love that drawing so very much.
Then it occurred to me, if my Mavenclad medication could be a superhero, what about all the other medications that I take? I ended up settling on Finley (Baclofin), Tara Dawn (Trazodone), Sandoz (Sandoz Solifenacin), Dez (Apo-Desmopressin), Tianado (Apo-Tizandadine) and Carley Bravo (CBD oil). They would be a group of superheroes that would do battle against Cracklepuss (Cerebral Palsy) and Max Shadow (Multiple Sclerosis), protecting the streets of Ottawa and keeping the people safe.
I normally write a story for Christmas every year and give it away for free. I thought it would be neat to write a story with this group of supers and set it during the holidays. It never occurred to me that I would write a full novella as I normally just write a short story to give away. I’m already thinking of other stories that could happen with the other characters.
I can’t tell you what joy this story has brought to me and how much fun it was to create a world of superheroes that are really just like ordinary people…with a bit of something extra. I do hope that you enjoyed this tale as much as I enjoyed writing it.
It comes out later this month, just in time for the Holidays! Stay tuned!
as the sea threatens
to take me away again,
my first thought is
“i didn’t ask for this.”
as the waters grow deeper,
i have to remember
that none of this is my fault,
that the disease
which ravages my
internal world is not
something i asked for,
nor is it something that
i can control.
much like the waters
which threaten to overtake me,
there is no way
i will know the path
that my disease,
the shadowy spectre
of multiple sclerosis,
takes me on.
all i can do
is take each step
one at a time
so that I can scale
each mountain that
blocks my path
and keep my head
above the waters
that threaten to
swallow me completely.
as I walk along
each mountain, each cliff edge,
i let go of the sea
within myself
so that it cascades
down the rockface
like a waterfall,
stretching its fingers
behind me, even as I
walk forwards
towards what
is possible.
carry that tarnished
piece of metal,
the penny which
contained a wish.
a piece of paper
with the words “…love is…”
written upon it,
kept like a spell
hidden inside a book.
the book itself,
a talisman against
the mundane,
its stories read so many times
that pages are beginning
to fall away from its spine.
magic can be so simple,
a mere thought
or significance given
to ordinary objects,
yet they shine
because we think they do,
proof that humans
are capable of
everyday magics and
acts of the extra ordinary.
What other things
shine like stars in your pockets?
My body contains the storm.
The rivers rage against the
rocky barrier of my skin.
Even as I try to remain upright,
water wants to push me down
to the ground so that
it can resume its rightful path.
The waters pull my body
every which way,
making my limbs
feel heavy and misshapen.
I try to walk and I can hear
the waves making the storm
I carry within me grow louder,
until all I can hear is the roar.
Eventually, all I can do
is given in to the pull of the waters,
the almost seductive lull.
By then, they have pulled me under
and I do everything I can
to escape their pull.
When I am lying down in the rapids,
I can look up and see the sun
and it’s the sun that lets me know
that I can swim.
I use its light to guide me
and soon, I am able
to see the rocks in front of me,
offering salvation from the water.
Sitting upon them,
I can still hear the waters
that move and sing inside of me.
I know that I will dance again,
that there is no way
I can let go of the water.
For now,
I listen to the waves
and I can feel the brightness
of the sun.
I approached the glass window.
The man on the other side reminded me of the guard to the land of Oz. I wondered briefly if he would say anything about a horse of a different colour. That’s what I was hoping for anyways. The man smiled at me, and it looked genuine.
“Hello there! Can I see some identification? Just a licence or a photo ID card will do, nothing fancy.”
I showed him my photo ID and he made a few notes in his computer, entering my name and statistics like height, eye colour, hair colour, etc. Then he held up a scanner. “Now I want you to remain perfectly still for me, this won’t take but a minute.”
“Why are you scanning me?” I kept the fear from my voice even if I couldn’t stop the worry from sounding so evident.
The man, his gold name tag said that his name was Clive, gave me a brilliant smile that showed all of his teeth but didn’t look threatening. “This is just so we can set a baseline. We need to know how much space there is within you before we give you anything back. You are aware of how the procedure works?”
“Yes,” I said. I had been reading nothing but medical journals for a few days now.
“Perfect. The doctor will look over the information that we collect today and then she will know how to proceed tomorrow and what kind of procedure you will need.”
“All right,” I said. I knew that I would have to come back at lest once. Occasionally, she wasn’t successful the first time around and it needed other treatments. I was hopeful for mine. “That’s fine.”
“Perfect. Just remain still for me and keep your eyes open. Try not to blink.”
“Why do you scan the eyes?” I asked. That was the one piece of information that I couldn’t find from reading the medical journals.
Clive gave me another brilliant smile. “The eyes tell the language of the heart. Did you know that you can tell a lot about how a person loves by looking into their eyes? They can tell us stories that not even the skin can recall.” He held up the scanner.
It looked like a scanner used in grocery stores, but I knew that it was a different kind. It knew that it saw deeper than any scanner at Walmart could. The medical journals said that it scanned your soul. I hoped that it would need to, that I would be allowed to have the procedure.
That evening, I wondered what the next day would bring. Would I be successful? And if I was, what would I do with all my newfound memories? Would they leave me changed or would I still be myself, but somehow more? Just like the medical journals not saying why they had to scan your eyes, they also did not specify what it felt like to have everything put back inside of you. How did a person live with what they had lost? The success rates were high, almost 100%, but there was that one percent of people that couldn’t handle it. How did you go from feeling nothing to feeling everything? It sometimes proved to be too much.
When I returned to the office the next day, Clive was there behind the glass. I wondered if he ever went home. He waved when he saw me. “You’re in luck! You’ve been cleared for the procedure! The doctor is waiting for you.” His smile widened. “In fact, here she is!”
I turned around and there she was. She was even more stunning than the magazine pictures. She came towards me, giving me a soft smile. “Jamieson, I’m so happy to see you, come in come in.” She held open the door to her office and I stepped inside.
The room was filled with soft blue light. She motioned for me to sit in a high-backed chair, and she took the other one across from me. “I’m so happy that you came to me, Jamieson.” Her smile was blinding but kind. “It’s not often that I get many patients with your potential.”
She started setting up a contraption that reminded me a lot of a tool that ophthalmologists used when they are testing your eyes. There was a chin rest and a soft pulsing light that shone that would shine in my eyes. I had read about the procedure in countless magazines.
“So, that’s what will make this all work?” I asked.
She smiled and the blue light shone off of her teeth. “That’s what will help your heart grow again.”
I shook my head. “I don’t understand.”
“Well, you gave so much of your heart away in previous relationships. They took and took pieces of your heart but didn’t give anything back. This procedure will rectify that.”
I nodded as if this all made sense. “Why the colour blue?” I asked. This was all I could think of. I had so many questions, but this was the one that came to the surface first.
The doctor gave me a kind smile that was less blinding than before and I found it very reassuring. She reached out and took my hand. “Blue is the colour of love, and of human emotion. It’s also the colour of your spirit, Jamieson. This will help heal your heart and your spirit will make sure to help you on this journey. You have so much empty space in your heart because you gave so much of it away. Do you want it back?”
I nodded and she gave me another kind smile. “Just put your chin here,” she said.
I did so and she turned on some calming music that immediately soothed me. She pressed another button and the blue light in front of me became brighter. As my body began to expand, I wondered if I had done the right thing coming here.